Saturday, April 25, 2026

2026-04-25 - milestones and status

this is WHERE john is now ...


🧠 Phase 1 — ICU → Neuro (you’re here)

Milestones just hit:

  • Vasospasm resolved
  • Brain drain (EVD) removed
  • Medically stable enough to leave ICU

What they’re watching now:

  • Stable vitals, no new neuro decline
  • Swallowing (can he eat safely?)
  • Basic participation (follow commands, engage)

next is .....


🚀 Phase 2 — Ready for IRF (the gate)

He moves to IRF when:

  • Medically stable (no ICU-level care)
  • Can participate in therapy (not perfect, just engaged)
  • Needs multiple therapies (PT + OT + speech)

👉 This is the critical placement decision


🏋️ Phase 3 — IRF (intensive rehab)

Goal: regain function fast

Milestones inside IRF:

  • Sit → stand → walk (even assisted)
  • Use of affected arm/hand improving
  • Speech / cognition improving
  • Can do basic self-care (toilet, dress, eat)

🧭 Phase 4 — Discharge decision (big fork)

At end of IRF, they choose:

🏠 Option A — Home (best case)

  • Safe to move around (maybe with walker)
  • Can manage basic needs or has help
  • Continue outpatient or home therapy

👉 This is the goal


🏥 Option B — SNF (step-down)

  • Not safe at home yet
  • Needs more rehab but less intense

👉 Temporary bridge


🧑‍⚕️ Option C — Long-term care (rare here)

  • Only if severe deficits + no recovery trajectory

👉 From your description: unlikely


⚡ Simple flow

ICU → Neuro → IRF → (Home ⬅️ goal) or SNF → Home


🔑 The real decisions

  1. IRF vs SNF first (you’re fighting this now)
  2. At IRF discharge: Home vs SNF
  3. Home support level (alone vs help vs services)


2026-04-25 hospital visit


2026 04 25, Saturday 

Spent some time with John. 


TL, DR

He is OUT of the ICU and was moved to Neuro. 


Where is he TODAY

Room 5137

Ascension Alexian Brothers

800 Biesterfield Rd, Elk Grove Village, IL 60007


Yes, please go visit if you can. 


How long will he be there?

Unknown. 

Drs will have to clear him for next step. 

And there needs to be an opening. 


What’s NEXT 

Long term rehab. 


I need to make a glossary!!!


The next step is when and which, will the family PUSH for IRF vs SNF. 

SNF sounds like it’s for worse cases. 



SNF

SNF (Skilled Nursing Facility)

  • Rehab + nursing care, but lower intensity than IRF
  • Typical after hospital if patient can’t handle 3 hrs/day therapy


Key differences (vs IRF)

  • Therapy: lighter (often ~1–2 hrs/day, not guaranteed daily)
  • Doctors: not daily oversight
  • Goal: slower recovery / stabilization


IRF

IRF (Inpatient Rehabilitation Facility)


What it means


  • Hospital-level rehab focused on getting function back fast
  • Built for stroke, neuro, ortho recovery


Key features


  • Therapy: ~3 hrs/day (PT + OT + speech), 5–6 days/week
  • Doctors: daily rehab physician oversight
  • Team: coordinated (PT/OT/SLP/nursing)


Blunt translation


  • IRF = aggressive, high-impact rehab → best recovery odds
  • SNF = slower, lighter rehab → fallback

I had some images from screen shots but failed at sharing them ... sigh ...









My visit today. 


No phone. He really can not talk on phone. 

But while I was there, I made two calls, Denise and Mitch, they got to say hi, etc. 


John made a face when I mentioned that I was interpreting his reactions. Nods, shakes, etc. 


So I pulled out my tablet with a communication app. 

And while he looked at it, I don’t think it made words. 

He did not reach out to touch it. 





And oh look, I found one with pictures. 

They have professionals for this. But sooner is better than later. 






Guarded optimism. 






the images missing from up top







Saturday, April 11, 2026

Aphasia apps and ideas.

Yeah — the naming is confusing. Here’s the exact one you want to start with:





🥇 

Get this one



➡️ SmallTalk Aphasia (Female OR Male — same app, just voice)


  • Tap picture → it speaks full phrase
  • Has basic needs, pain, food, help, etc.
  • Zero setup, works immediately
  • Designed for stroke/aphasia communication  



👉 Pick Female voice or Male voice — doesn’t matter otherwise.





🧠 If they’re literally in ICU right now



Also grab:



SmallTalk Intensive Care



  • Prebuilt phrases like:
    • “I’m in pain”
    • “I need help”
    • “I want a doctor”

  • Specifically built for hospital situations  






🧩 Ignore these (for now)



  • Daily Activities
  • Conversational Phrases
  • Letters / Phonemes
    → these are therapy / later-stage






⚡ TL;DR



  • Start: SmallTalk Aphasia (male or female)
  • Add if ICU: SmallTalk Intensive Care





If you want, I’ll strip it down even further to a 4-button screen (YES / NO / PAIN / WATER) which can be even faster than any app.